I was diagnosed with breast cancer 01/02/15. I underwent a lumpectomy 01/07/15 from one surgeon who then sent me home with no follow up care instructions. After 2 weeks I called the nurse navigator to ask how am I to get the biopsy results. She stated I needed to go back for a follow up appointment. My surgeon was out of office so she scheduled me with his partner surgeon. This surgeon said I would need to go through 5 weeks of radiation therapy followed by 5 years of Tamoxifen. She said she wanted to ensure my cancer would react to the radiation therapy therefore she ordered the tissue to be sent for the oncotypeDX testing. She said it would take approx. 3 weeks to get the results.
Long story short after 6 weeks I had not received the results I called talked to her Nurse assistant who said she would find out what is going on and either she or the Dr would call me back. No one called back. After another week I called again but only got voicemail and left a message. The following week I received a response from the nurse assistant who said that the received notice that the tissue sample sent was to small to perform the test. So she had requested the remaining sample to be sent and they again responded says to tissue sample was too small to complete the test and asked me if I had any tissue samples anywhere else other than Jordan Valley. She said she would get with Dr and find out where we go from here. To date I have had no response on where we go from here and obviously there is no tissue left for the test to be performed and the Dr has never once reached out to guide me if I should proceed with radiation therapy and then to tomoxifen I have just been left to figure out what to do next. Is this the right way to approach patient care? They should have known the required sample size for the test and why did they not send the entire tissue the first time and not cut it up?
Long story short after 6 weeks I had not received the results I called talked to her Nurse assistant who said she would find out what is going on and either she or the Dr would call me back. No one called back. After another week I called again but only got voicemail and left a message. The following week I received a response from the nurse assistant who said that the received notice that the tissue sample sent was to small to perform the test. So she had requested the remaining sample to be sent and they again responded says to tissue sample was too small to complete the test and asked me if I had any tissue samples anywhere else other than Jordan Valley. She said she would get with Dr and find out where we go from here. To date I have had no response on where we go from here and obviously there is no tissue left for the test to be performed and the Dr has never once reached out to guide me if I should proceed with radiation therapy and then to tomoxifen I have just been left to figure out what to do next. Is this the right way to approach patient care? They should have known the required sample size for the test and why did they not send the entire tissue the first time and not cut it up?
